myotonicdystrophy
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Registered: 03/11/06
Posts: 334
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Reply with quote | #1 |
From: lynn
Category: myotonic dystrophy
Date: 14 Jun 2001
Time: 00:00:25
Remote Name: 165.247.125.87
Comments I am curious if anyone who has myotonic has noticed their little finger sitcking out stright while holding a cup or utensil. Mine have always done this and it was a trait believed to be from my father who also does this. I have been diagnosed with the disease and it was traced to my fathers family. He refuses to get tested and the only other person who had this position with the little finger was my brother who passed away last year. He planned to get tested but died from a sudden heart attack before the test was done. We don't know if he had it or not and but I believe he did from all the symptoms he had.
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Richard Weston |
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myotonicdystrophy
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Registered: 03/11/06
Posts: 334
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Reply with quote | #2 |
From: Igor Etxabe
Category: myotonic dystrophy
Date: 16 Oct 2003
Time: 08:57:10
Remote Name: 80.58.48.235
CommentsDear Lynn, They confirm my wife disease 3 days ago, and when I read your mesagge, I see that she has exactly the same problem. I would like to hear from your experience about the little finger. Please, let me know about it, I would appreciate a lot. Best wishes. Igor. my email: colorvir72@terra.es
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Richard Weston |
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myotonicdystrophy
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Registered: 03/11/06
Posts: 334
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Reply with quote | #3 |
From:
Category: myotonic dystrophy
Date: 15 Jun 2001
Time: 17:48:05
Remote Name: 203.98.21.41
Comments ohh my god see this hapopens to me all the times see theyh suspect that i might have mytonic dystop[rhy but havent confirmed it yet but yes i do have my little finger stick out all the time 
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Richard Weston |
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myotonicdystrophy
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Registered: 03/11/06
Posts: 334
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Reply with quote | #4 |
From: Webmaster
Category: myotonic dystrophy
Date: 21 Apr 2002
Time: 13:21:49
Remote Name: 209.172.185.85
Comments Many times I have burned myself while cooking and closed my fingers in doors because my mind says that my fingers are bent when they are actually sticking straight out. Is there any type of help for this problem? I will be Anxious to hear from you because my daily activities are really becoming difficult
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Richard Weston |
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myotonicdystrophy
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Registered: 03/11/06
Posts: 334
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Reply with quote | #5 |
From: Igor Etxabe
Category: myotonic dystrophy
Date: 16 Oct 2003
Time: 08:36:36
Remote Name: 80.58.48.235
CommentsRecently I start having the same dificuklties. I would like to hear from your experience. Please, send me an email to colorvir72@terra.es. Regards.
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Richard Weston |
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Nicknerd
Registered: 09/30/09
Posts: 1
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Reply with quote | #6 |
My sister and I both have this 'anomaly.' We noticed it many years ago and just figured it was some inconsequential genetic thing...
I have what I believe to be grip myotonia...I have had this for many years, but had a lot of difficulty explaining it to doctors, and therefore ended up in the rheumatology depot. for many years...A couple of years ago, I developed the same 'stiffness' in my jaw...Again, this was believed to be a manifestation of arthritis as I have many autoimmune markers...
In December of '08, I developed severe speech problems...I was referred to a neurologist who diagnosed me with MG and a thymoma...I had an operation to remove the tumour in July...
As I am still having issues with my hands that can't be explained my the MG diagnosis, I came across MMD and I seem to fit very nicely...I have mitral valve prolapse...I have recently developed 'skipping' heart beats...My sister also has a murmur...I have had digestive issues since I was very young...I was also born with a clubbed foot...My sister also complains about difficulties with swallowing, but is very much in denial....
I have developed prednisone-induced diabetes after only taking prednisone for 2-months...
Anywho, it certainly sucks to have so many diseases...I'm pretty sure that I have MMD and that it has come from my mom's side as she has a bit of the grip problem as well...
Sorry for all the info...I just needed the release...
If anyone can relate, please message me! I am going to see my neuro. soon and I don't know how to bring this up...It's so strange!
By the way, I am 26-years old and my sister is 31.
Nicky
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Nicky |
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