pookie
Junior Member
Registered: 03/10/09
Posts: 4
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Reply with quote | #1 |
I just wondered if anyone has experience of sudden acceleration of symptoms especially leg weakness?
My situation is that my wife who is 31 (diagnosed about 11 years ago) was able to walk with only slight discomfort until a couple of weeks ago.She used to have fallings about once every few months at most and almost exclusively very late at night or when she had been extremely stressed.
However,within the last week she has fallen at least once a day and has to use crutches everywhere,even indoors and has had to resort to crawling up stairs and sometimes cannot even get herself from crawling position back into bed.She has constant pain in her legs and occasional severely intense shooting pains .She also has developed burning sensations in her feet.Now I pretty much know what the burning sensation is but really dont know how to explain it to her.I think thats best left to the neurologist.
We are going to see about her trying out some wheelchairs because she wont really leave the house (understandably) on her own right now but we are not sure her arms are strong enough to push herself and an electric one would be too heavy to get out of the car! catch-22 or what?
I have managed to get an appointment with her neurologist for next friday (which is an acheivement in itself),but i just wondered if anyone else had experienced a sudden increase in problems such as this?
I guess i am hopeful that, as DM is supposed to be a very gradual process ,that the sudden increase will have a different cause and hopefully will be something treatable.Yeah,i know i'm sort of clutching at straws but hey...sometimes you gotta do whatever helps you through the day.
I love her so so much and it is so hard to see a loved one struggling and so scared about the future (as i guess a lot of you know from one side of the fence or the other).I wish i could just carry her around in my arms for the rest of my life or at least swop places with her every now and then to give her a break from it all.I dont mind suffering at all if it means she doesnt because she is my world and my life and always will be.Okay enough,of the soppy stuff before i start welling up and/or start making some people physically sick!
By the way,if anyone finds a magic wand lying about,any chance i can borrow it? I promise to share it with everyone else afterwards...
Sorry this post stretched on a bit and thanks for sticking with me to the end!
The best of british to you all.
Pookie
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godoggo3
Super Member
Registered: 08/31/07
Posts: 43
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Reply with quote | #2 |
This is such a terrible disease that it is so sad to see family members loose strength and have to struggle. Great that you are seeing the neurologist. That will be a help to see what is the cause. Unfortunately it could be that the muscle are just very weak now...
There are electric scooter that break into little pieces and you can put in the trunk of the care that is what I would recommend here. This one is a little heavy I would try and get a lighter one than the hone we have.
http://www.thescooterstore.com/products/scooter_revo.html
Hope that helps. Sorry for all your troubles...
Richard
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This is a disease that will be conquered one day!! |
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