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International Myotonic Dystrophy Organization > Message Board > Teen social emotional issues
 
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Raven
Registered: 08/09/09
Posts: 1

    08/09/09 at 10:27 AM
Reply with quote#1

I have a 16 year old teen daughter who has been acting out.  she is emotionally disconected, has had the typical lack of facial expressions that are getting worse, she also seems absent of feelings regarding her actions.  She makes poor decisions and is having boundary issues and lies.   I don't know what to do she just seemed to explode this summer.  I dont know if this is the disease which she has DM1 or typical teen problems?  Please help I am at my wits end.  By the way she does not know she has this disease.

pookie
Junior Member
Registered: 03/10/09
Posts: 4

    08/13/09 at 11:02 AM
Reply with quote#2

Hi Raven.

I guess its impossible to be sure whether the condition is adding to her/your problems but the symptoms you have described are unfortunately far too familiar for your average teenager.I know everyone knows someone who has stories of this wonderful child who just studies and is polite all the time but unfortunately,little house on the prairie type behaviour like that isnt really the norm (unless you happen to live in a cottage on a hillside in the 19th century.)

I hope you dont think i'm making light of your problems as i know,with or without DM, teenage years can be a nightmare for both children and parents.You really do have my sympathy.

Sorry it doesnt really help,but i do wish you both the best of luck in dealing with this difficult time (and the teenage years dont last forever...sometimes they just feel like it).

I know its way way easier said than done but ,if possible, try to take a little time out for yourself to get your head away from your daughters problems,just to give yourself that little bit of space to breathe once in a while.

take care,

Pookie



RPittsley
Super Member
Registered: 07/03/08
Posts: 26

    09/10/09 at 08:57 AM
Reply with quote#3

I have four children.  The first two, age 15 and 13 do not have MMD.  The second two, a set of twins, age 11, do.  All four of my children inherited ADHD from their father and have been diagnosed with clinical depression.  While the two older ones are having their share of the listed behaviors, as I would expect in "normal" teenagers, the twins with MMD are way worse.  We have them on medication for the ADHD and they have been in therapy for three years and the social workers at school have worked with them.  We see a neurologist, a psychologist, a neuro-psychologist, and a behavioral peditrician.  They have also spent a year in occupational therapy for sensory issues.

Good luck!  I would start with a visit to your physician and see if you can get referrals for any other help.

My girls were diagnosed as having an emotional behavioral disorder and we were able to get a Personal Care Assistant through Social Services department of Children's Mental Health.  This lets me get away sometimes.  We cannot leave the two younger ones alone with the older ones or a blood bath occurs.
breezee
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Registered: 11/06/09
Posts: 1

    11/06/09 at 09:57 AM
Reply with quote#4

why haven't you told your 16 year old she has the disease?



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