This is the message boards forums for the International Myotonic Dystrophy Organization. This site is for members and others to read and
post information about Myotonic Dystrophy. Please help us by posting information about the disease that you are aware of. You will need to do a simple registration process that will prevent spammers from posting on
the site only if you want to post. No registration is required for reading. Whether you are viewing or posting we thank for all your help. The main organization website is http://www.myotonicdystrophy.org
You may also want to view the guestbook as there is some good information there. http://www.theguestbook.com/read.php/613431
This is good news. The more disappointing news is that the iPlex study showed no real difference to folks with DM1. The first trial had been very promising. Then the second part of the phase II study showed little overall promise although there was some hope for some results with insulin resisteant patients. This is disappointing as for those with the advanced conditions, the next drug will be years away.
There is a lot of new discoveries and new therapeutic ways to deliver lethal blow to these diseases on a cellular and organism level. There is years of testing in the way. The drug companies will need patients to do the testing on.
IDMC-7 will take place next month in Germany. We hope to bring you again news that will offer even more hope.
Richard
__________________ This is a disease that will be conquered one day!!
