MESSAGE BOARDS

This is the message boards forums for the International Myotonic Dystrophy Organization. This site is for members and others to read and post information about Myotonic Dystrophy. Please help us by posting information about the disease that you are aware of. You will need to do a simple registration process that will prevent spammers from posting on the site only if you want to post. No registration is required for reading. Whether you are viewing or posting we thank for all your help. The main organization website is http://www.myotonicdystrophy.org You may also want to view the guestbook as there is some good information there. http://www.theguestbook.com/read.php/613431

Intl Myotonic Bulletin Board Register  |  Login  |  Search  |  Chat

International Myotonic Dystrophy Organization > Message Board > excessive sleepiness   Username: Password:   Remember Me?

Thread Tools  | Search This Thread  Reply   Author Comment   View Member ProfileSend Private MessageFind Member's Threads Find Member's Posts sleepiness_vs Registered: 08/08/06 Posts: 1      08/08/06 at 04:34 PM Reply with quote #1 Hi. I'm researching my excessive sleepiness all over the internet. I've taken tests/questionnaires and gotten a lot of information off of these two websites:   http://www.alertnessmatters.com http://www.excessivesleepiness.com   I think I saw a portion of your website that mentioned the wake promoting agent called Provigil. I've looked over information at http://www.provigil.com but was just wondering if anyone here knew more about it.   Thank You. View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts lyzarose Registered: 08/08/06 Posts: 1      08/08/06 at 06:04 PM Reply with quote #2 I had great success with Provigil but developed an allergy to it (bad hives).  Now I am taking Amantadine.  It offers some relief but not as much as the Provigil.  Good luck! View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts dmchat Super Member Registered: 05/01/07 Posts: 71      05/01/07 at 08:31 PM Reply with quote #3 In the UK the doctors can prescribe 2 different drugs to help with the day time sleepiness, the first is Modafinil (Also known as Provigil) and the other 1 i cant remember its name, but its something like concerta. My wife started on Provigil at 100mg a day, she has recently moved up to 200mg a day, 1 at 9 am and the other one at around 12 noon. The drug has helped in reducing her day time sleepiness __________________ Simon View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts don1624 Junior Member Registered: 08/25/07 Posts: 2      08/25/07 at 02:16 PM Reply with quote #4 Hi I take concerta for sleepiness.  I also heard about Provigil but my heart doctor wouldn't approve for me. __________________ Donald C David View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts Aimee Super Member Registered: 07/28/07 Posts: 37      08/27/07 at 09:08 AM Reply with quote #5 I also have taken provigil and at first I liked it I was more alert but not wired after about 2 weeks it quit working a tried 2 a day same result but I have a friend who swears by it. __________________ Aimee Jo View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts katy Senior Member Registered: 11/04/08 Posts: 12      09/07/09 at 05:08 PM Reply with quote #6 I also had good luck with Provigil for about a week or 2.  I think it was wishful thinking on my part.     Fatigue is my number 1 complaint... Previous Thread | Next Thread Reply   Bookmarks    Digg  del.icio.us  StumbleUpon  Google