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International Myotonic Dystrophy Organization > Forums > nectar T
 
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latinabd

Registered: 07/22/10
Posts: 1

    07/22/10 at 01:47 AMReply with quote#1

Has anyone heard of nectar T?  Has anyone used nectar T?  If  anyone has used nectar T what was your experience and or results with this product.
nlr1977

Senior Member
Registered: 08/28/07
Posts: 16

    07/25/10 at 03:43 PMReply with quote#2

Hi, I have heard of Nectar T. I have recently been looking at the website of the people who supply it at the following website:
http://www.musculardystrophy.gr

I was given an order form, and price, etc.
I too would like to hear any information people may have on it, or anyone who is using it. I have a 4 1/2 year old with Congenital Myotonic Dystrophy and have Myotonic Dystrophy myself.
pookie

Senior Member
Registered: 03/10/09
Posts: 16

    07/26/10 at 03:36 AMReply with quote#3

I had a quick look into it google wise as well but it seems very wierd that only two sites have any mention at all about this treatment which, to me, sets alarm bells ringing.

if it really did work i would expect it to be a lot more widespread.

I'm not saying that it doesnt have any benefit but i am just very very sceptical especially as it seems to have been around for a number of years but no-one seems to know about it.I also notice someone asked the same question on this forum about a year ago and no-one had experience of it then.

Actually i have just noticed that there is an advertisement for the product on this very website.Would it have been checked out at all before being allowed on here does anyone know?

Pookie

 


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