pookie
Senior Member
Registered: 03/10/09
Posts: 16
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| | 07/14/10 at 08:28 AM | Reply with quote | #1 |
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Hi everyone.Hope you are all coping as well as can be expected and if not,just remember you are not in this alone!
My wife is now stuck in a wheelchair full time.Well,not exactly stuck in it (which would be really awkward) but her legs will no longer support her at all so she cannot even stand,let alone walk.
This is harsh to have to deal with for her but,she has been brilliant at adapting to it and i am so proud of her i could burst.But that isnt my point.My question is,okay, so the legs have gone but what could happen to the arms and hands?
The real fear is that she may lose the use of her arms/hands.Is that possible? She has had the myotonia in her hands for all the years i have known her but i wondered if anyone out there had experience of sufferers losing the use of their arms/hands? In my own research I havent found any reference to this actually happening and the only references are to general muscle wasting but i thought i would check with your goodselves for the reality...
many thanks,
Pookie
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nlr1977
Senior Member
Registered: 08/28/07
Posts: 16
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| | 07/25/10 at 04:07 PM | Reply with quote | #2 |
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I have met people through this website, who have children with MMD, and as they have aged into thier 40's they too have become weak in the legs, to the point of actually having falls, and using a walking stick to aid with walking. I haven't heard of the loss of arm use though.
Hope this helps.
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