MESSAGE BOARDS

This is the message boards forums for the International Myotonic Dystrophy Organization. This site is for members and others to read and post information about Myotonic Dystrophy. Please help us by posting information about the disease that you are aware of. You will need to do a simple registration process that will prevent spammers from posting on the site only if you want to post. No registration is required for reading. Whether you are viewing or posting we thank for all your help. The main organization website is http://www.myotonicdystrophy.org You may also want to view the guestbook as there is some good information there. http://www.theguestbook.com/read.php/613431

Intl Myotonic Bulletin Board Register  |  Login  |  Search  |  Chat   International Myotonic Dystrophy Organization > Forums > i need people to talk too   Username:   Password:        Remember Me?   Reply   Author Comment   View Member ProfileSend Private MessageSend EmailFind Member's Topics Find Member's Posts thegame1975 Registered: 03/26/10 Posts: 2      03/26/10 at 05:04 AM Reply with quote #1 hi my name is matthew and i live in hull England i have been married for 12years now and my wife has myotonic which i am her full time carer i am only 34 and my wife Teresa is 41 i am looking for friends who care for a love one just to chat too,i feel alone and don't know where to turn too,i don't like seeing my wife like this i love her very much,so i just want to talk and be friends with people who are in the same boat has me,so if you need a friends to chat too,then i am the one your looking for thanks __________________ matthew simpson Loading... View Member ProfileSend Private MessageSend EmailFind Member's Topics Find Member's Posts Mlee Junior Member Registered: 11/17/09 Posts: 4      03/27/10 at 07:21 PM Reply with quote #2 Hi Matthew,     My husband had md and my daughter has it, too. I know that this is a really rough time and no one seems to understand how alone you can feel. When my husband was diagnosed no one told me that the disease changes peoples personalities. I feel that if I had known I would have been more patient. Make sure you take time for yourself and alone time with friends. You are going to need a good support system.     Take care,  Merrie __________________ Merrie L Simek Loading... Previous Topic | Next Topic Print Tweet Reply