duke0219
Junior Member
Registered: 07/20/10
Posts: 3
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| | 07/21/10 at 06:51 PM | Reply with quote | #1 |
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Hello. I am a caregiver for two adolescents (brother and sister) with Myotonic Dystrophy. The boy is sixteen and the girl is eighteen. They both wear pull-up diapers. However, I have been working with them to transition into underwear for five months. At one time, surgeons told their mom the girl "might need to wear pull ups for the remainder of her life." But at that time she was only about sixty-five lbs. Now she weighs about 110 lbs. She is MUCH more healthy. In fact, both children are capable of controlling their bowels. They use bowel movements to manipulate, seek revenge, etc. The boy will soil himself to annoy me and some of the students in his school. The girl will do it due to laziness, to be passive aggressive, to gain desired situations or activities, etc.
They transitioned pretty well into underwear. If they had an accident, I made them clean it up themselves. I gave them candy every time they put on underwear and/or used the toilet. A few weeks ago, they were toilet trained. Their mom had them wear underwear all day until they went to bed. NO Accidents! Not even during the night. They started going to a summer camp about two weeks ago and then it all went to heck. The mom sent them in pull ups. The girl soiled her pull up TWICE in one day of camp at least THREE DIFFERENT DAYS!! They sometimes sit in dirty pull ups for hours! I don't understand it psychologically. They understand embarrassment; because they avoid it all costs. It's obvious when they soil themselves because of the smell. So now my supervisor is putting them back in pull ups and we are going to reward them for having 5 "accidents" or less a week. I am SUPER frustrated. I worked with them very hard to succeed at this and now they are back to the beginning.
After reading this, please respond. Please let me know your successes, failures, what worked, what didn't. It would be greatly appreciated, even if it's just a one or two sentence reply. I am willing to try anything! Thanks.
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